Project Singular is a research study to learn more about single ventricle heart disease
We don't know why some children are born with single ventricle heart defects. This research program was created to learn just that.
Project Singular is on a mission to figure out why single ventricle heart defects happen by looking at the DNA of patients and their immediate family members.
We hope that by looking at the genes of at least 5,000 patients with a single ventricle and their immediate family members, we will find the causes of single ventricle and related diseases.
In order to reach our goal, we need your help.
The study has not started yet, but we can let you know you when it does.
Sign up with your email address to be notified when Project Singular starts.
About the Study
You do not need to visit any clinical sites. You will not receive any compensation or benefits for your participation. There are no fees associated with this study. This study is expected to last many years.
Who Can Participate
You can join Project Singular if you live in the United States or Canada and meet one of the below criteria:
An individual with a single ventricle heart defect, at any age or stage;
A biological parent or sibling of an individual with a single ventricle heart defect; or
A biological child of an individual with a single ventricle heart defect.
The Project Singular study is a research program supported by Additional Ventures, led by Dr. Kirstie Keller, in partnership with Boston Children’s Hospital.